The internet is full of SCI link lists nobody curates. This isn't that. Every entry below earns its place, with a note on what it's actually best at — so you go to the right place for the right problem. Short on purpose.
Clinical information you can trust
- MSKTC (Model Systems Knowledge Translation Center) — the gold-standard plain-language factsheets, written from federally funded SCI research centers. Best at: a reliable first answer on any SCI health topic.
- PVA Clinical Practice Guidelines — the actual clinical guidelines your doctors should be following (AD, bowel, bladder, pressure injuries, upper limb…). Best at: bringing to an appointment when care seems off-script.
- Reeve Foundation — Today's Care — broad, well-maintained care library plus a free information-specialist phone line and peer mentoring. Best at: getting a human to help you find answers.
- SCI Model System Centers list — the federally designated research/care centers (14 funded for 2021–2026) (we keep a searchable version at /model-systems/). Best at: finding top-tier specialized care.
Community & lived experience
- SPINALpedia — thousands of lived-experience videos by injury level, plus mentoring, employment, and insurance-appeal resources. Best at: seeing someone like you do the thing. (Our guide: peer stories.)
- FacingDisability — interview videos of survivors and family members answering real questions. Best at: family members hearing honest answers early on.
- United Spinal Association — national org with local chapters, peer groups, and an 'Ask Us' resource center. Best at: finding in-person community and advocacy near you.
- CareCure Community forums — the long-running SCI forum with two decades of searchable threads. Best at: the obscure problem someone has definitely had before.
- Adaptive Sports & Support Finder — our searchable directory of 612 adaptive sports, SCI peer-support, and activity-based therapy programs across the U.S., DC, and Canada. Best at: finding an in-person team, peer group, or post-discharge activity-based program near you.
Money, rights & practical help
- Social Security (SSA) — the primary source for SSDI/SSI — start at our plain-language benefits guide, verify here.
- Ticket to Work / WIPA — free federal benefits counseling before you try working. Best at: running your exact numbers so work doesn't cost you benefits.
- Centers for Independent Living finder — free local help with benefits, housing, PCA hiring, and skills — run by people with disabilities. Best at: a local human for bureaucratic battles.
- ADA.gov — your rights in employment, housing, businesses, and government services, from the source. Best at: knowing what you can insist on.
- JAN (Job Accommodation Network) — free expert advice on workplace accommodations, searchable by condition. Best at: preparing an accommodation request. (Pairs with return to work.)
Condition- and situation-specific
- SRNA (Siegel Rare Neuroimmune Association) — the home for transverse myelitis and related non-traumatic causes. (Our guide: non-traumatic SCI.)
- Spina Bifida Association — for congenital and pediatric-onset spinal conditions — different community, overlapping daily-living knowledge.
- A Closer Look at Stem Cells (ISSCR) — how to evaluate any 'regenerative' treatment claim. Best at: pressure-testing miracle marketing. (Our guide: avoiding scams.)
- VA Disability — service-connected SCI benefits and the VA SCI/D system of care for veterans.
- Move United — adaptive sports programs across the US. (Our guide: adaptive sports.)
Spotted a dead link, or know a resource that earns its place here? Tell us.
SCI.help articles are information, not medical advice. Practice varies by injury level, provider, and institution — always confirm specifics with your own care team.