I've been at this for years
Years in, the game changes: protect the shoulders, kidneys, skin, and bones that carry you, stay ahead of the slow-moving complications, keep an honest eye on the research — and put your hard-won knowledge to work for the next person. Everything on the site for this stage is below.
Stay ahead of it
Annual Health Check-ups →
The yearly surveillance checklist that catches complications while they're still small.The road ahead
Aging With SCI →
Shoulders, bones, skin, energy — what changes with time and how to plan for it.Worth watching
Clinical Trials Finder →
Thousands of current SCI trials — filter by treatment, target, and recruiting status.The long-game body
Decades of wheeling, transferring, and sitting add up. These are the systems that need active protection — and the slow complications worth catching early.
- Shoulder Health & PreservationYour shoulders are your legs now — protect them like it
- Bone HealthOsteoporosis and fragility fractures below the injury
- Kidney & Bladder SurveillanceThe scans and labs that catch trouble early
- Bladder & Kidney StonesWhy they're more common with SCI, and what to do
- Post-Traumatic SyringomyeliaThe late complication every veteran of SCI should know the signs of
- Heterotopic OssificationBone growing where it shouldn't — signs and treatment
- Pressure InjuriesThe risk never retires — neither do the daily checks
- When a Sore Won't HealEscalation steps before it becomes a surgery
- UTIs, Years InRecurrent infections, colonization vs. infection, and prevention
- Respiratory CareKeeping breathing strong as the years add up
Pain, spasticity & the mental long haul
The problems that grind rather than announce themselves. There are more options than most clinics mention.
- Pain & Nerve PainNeuropathic pain, overuse pain, and the real options
- Spasticity & SpasmsTriggers, meds, and when a change in spasms means something
- Baclofen PumpsWhen oral meds aren't enough — how ITB pumps work
- Stimulators for PainWhat the evidence shows for SCS and chronic SCI pain
- Medication & Supplement SafetyLong med lists have long interaction lists
- Mental Health, Years InBurnout, depression, and staying connected decades later
Research & what's actually coming
An honest read on the science — what's real, what's hype, and how to join the research without getting scammed.
- Is a Cure Close?The real state of SCI research in 2026
- Epidural StimulationWhat stimulator research actually shows for recovery
- Stem Cells & PeptidesSeparating real science from expensive hype
- How Trials WorkFinding real research safely — and what joining involves
- Clinical Trials FinderThousands of current SCI trials, updated daily
- Avoiding ScamsMiracle clinics target people exactly at this stage
- Research & Trials ForumWhat the community is hearing and trying
Stay active & connected
The people who do best decades in have two things: something that keeps them moving, and people who get it.
- Adaptive FitnessExercise that protects shoulders instead of spending them
- Adaptive Sports & RecreationFrom handcycling to hunting — how to start
- Adaptive Sports & Support Finder612 programs and peer groups across all 50 states
- Traveling With SCIAir travel, hotels, and wheelchair logistics that work
- Peer SupportSupport groups and mentoring — giving it and getting it
- Wins & Milestones ForumCelebrate the victories nobody else understands
- Community ForumCompare notes with people who get it
The long-game money
Working, saving, and keeping coverage — the rules that shape the next decades, not just the next check.
- Disability & Benefits HubSSDI, SSI, Medicare & Medicaid — all 10 guides
- Working on DisabilityThe rules everyone gets wrong — and how to work safely
- SSA Work IncentivesTicket to Work, trial work periods, and expedited reinstatement
- ABLE Accounts & TrustsSaving without losing benefits
- Legal & Financial GuideSettlements, special needs trusts, and ADA rights
- Veterans With SCIVA SCI centers, benefits, and programs for veterans
Pass it on
Twenty years of figured-it-out is exactly what the newly injured person in the hospital bed needs. This site runs on it.